Worldwide Assoc. for ME/CFS Awareness & Research

A quick question...(x-posted)
femaelstrom
What time saving tips do you good folks have related to your daily routines? How do you find they help you manage your symptoms?

Basically, I have ended up somewhat collecting them and am always keen to gather more so here seemed like a good place to ask!



My treatment at Breakspear hospital and other things you can do to help ME/CFS and IBD
WAMCARE
redtoffee
Breakspear Hospital

The truth is, I do recommend Breakspear. I will tell you the truth and see if you want to go down that path. You can read my journal entries here to find out what I have been having done at Breakspear. Although I do need to update for this year. http://www.caringbridge.org/visit/lauradunks/journal

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Please vote for the WPI to get up to $200000 in the final round of vivint
WAMCARE
redtoffee
The Whittemore Peterson Institute (WPI) is in the final round of the vivint competition. Please vote every day for the next 10 weeks, 4 days. If the WPI comes first in the region it will win $100K. If it wins overall it will win $200k. It is currently in 1st for the region and 4th overall.

Please like the page here: http://www.facebook.com/VivintHome
and pls vote daily for 10 weeks plus here: http://www.vivint.com/givesbackproject/charity/769

It just takes two clicks a day! Voting started today for the final round.

If you want to join a group and get a daily reminder email to vote, go here:
https://www.facebook.com/event.php?eid=121179681298558

To find out more about the WPI, go here: http://www.wpinstitute.org/

Thank you! Please spread the word.

Laura
~X~

6 hours left to vote for ME/CFS research and other neuroimmune illnesses
WAMCARE
redtoffee
Just a reminder if you havent voted yet for the WPI...

We are in twelfth place and still dropping (the WPI) - currently entitled to $40000. We are risking losing the money at all. Please tell everyone you know to vote. It only takes two ticks and there is 6 hours left. Imagine what could be done with the money.

The WPI research into other illnesses like autism and fibromyalgia.

Instructions here: http://bit.ly/mCvKVM

Thank you.

Laura
~X~

Please vote for ME research in 2 competitions
WAMCARE
redtoffee
Imaging what these grants could achieve for ME/CFS research!

http://www.facebook.com/event.php?eid=121179681298558&ref=notif¬if_t=event_invite


This facebook group has links to the sites and instructions.

Please vote daily for the WPI to receive $125000 through Vivint for less than 3 more days.

Please vote for the WPI to receive $500000 through chase community giving. One off vote. Also vote for CFIDS assoc of America here http://apps.facebook.com/chasecommunitygiving/charities/205904991-whittemore-peterson-institute-for-neuro-immune-disease?src=twitter

Thank you!

Laura
~X~

ME/CFS awareness video - this week is international ME/CFS awareness week
WAMCARE
redtoffee

Excellent video about ME.This week is ME awareness week. Please watch and spread the awareness. This video is by my friend Daisy and is amazing. It also has pics of me and many of my friends included. It is also getting loads of hits!


 

Laura
~X~


Please vote for M.E. to get the attention it deserves
WAMCARE
redtoffee
Dear all,

I am an emailing you to give you the opportunity to vote to get M.E. the attention and research it deserves. Read the extract below, which was written by a friend of mine.

Thank you,

Laura

http://38degrees.uservoice.com/forums/78585-campaign-suggestions/suggestions/1601597-fight-for-those-with-m-e

38 Degrees want people to suggest & vote for new ideas to campaign about. Please follow this link & vote for my proposal to fight for M.E sufferers.


My proposal is -
1) To get the NICE guidelines rewritten, and replaced with the Canadian guidelines.
2) To get the NHS to view M.E & CFS as two separate illnesses in keeping with the World Health organisation classification
3) Fund more research into biomedical causes, especially XMRV.


Their NHS campaign already has 11 thousand signatures!
If we had a group like this behind us it could make a real difference. So please get everyone to vote for my proposal!!
Each person has 10 votes, and you can use a maximum of 3 on this proposal!!

PASS ON TO ALL

Amy xxx


http://38degrees.uservoice.com/forums/78585-campaign-suggestions/suggestions/1601597-fight-for-those-with-m-e

WAMCARE auction results for ME/CFS research and announcement
WAMCARE
redtoffee
 WAMCARE announcement - I will reveal how much money was raised for ME/CFS research. Also why WAMCARE has closed as a charity. Please spread the word.

http://wamcare.blogspot.com/2010/12/auction-results-and-news-regarding.html

Thank you

Laura Dunks

Please vote for ME research on a facebook application
WAMCARE
redtoffee
The following information has been copied from various sources. If the charity P.A.N.D.O.R.A receives enough votes they will get a grant which they want to use for neuroendocrineimmune research (into ME and similar illnesses.) Voting is free and takes a few seconds. PANDORA is the only ME charity that is in with any chance of wining money. So please vote!

P.A.N.D.O.R.A.'s number one focus is the establishment of the NeuroEndocrineImmune (NEI) Center, a grass-roots patient-driven and physician-approved community project, to be located in the state of New Jersey, and with satellites offices. Our mission embraces neuroendocrineimmune disorders (NEIDs) such as chronic fatigue syndrome-ME, fibromyalgia, chronic Lyme disease, multiple chemical sensitivity (environmental illnesses), and Gulf War Syndrome/Illnesses. Our goals are: to continue to provide educational programs for patients, caregivers, physicians, and the public; advocate and spearhead grass-roots initiatives to raise awareness for NEIDs and for the substandard quality of life individuals with NEIDs face daily ; achieve successful and supportive partnerships with local, state & federal government health agencies, and other similar organizations; support and advocate for increased scientific research; encourage and assist patients & their families in leading successful live

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1 day left on current items on EBAY until July 6th
WAMCARE
redtoffee
1 day left items on EBAY charity auction until July 6th including:


Aaron Pritchett signed photo
Alan Fletcher (RARE signed photo)
4 Schalke 04 signed fan cards (Manuel Neuer, Felix Magath, Benedikt Howedes, Lewis Holtby)
4 Neighbours fan cards (Susan, Karl, Bridget, Toadie.)
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